Agenda 2030: a look back and looking ahead

Elizabeth Lockwood is CBM’s UN Advocacy Officer in New York, and she shares this blog originally posted through CBM International. Elizabeth focuses on developing advocacy strategies to raise awareness, network, build capacity, and lobby for the rights of persons with disabilities at the UN level in relation to the UN Convention on the Rights of Persons with Disabilities and Inclusive Development. She also coordinates efforts of mainstreaming persons with disabilities in the post-2015 sustainable development agenda and conducts research and writes briefs to assist with strategies for inclusion of disability issues in Millennium Development Goal efforts. Elizabeth has worked with Deaf communities in five countries focusing on advocacy and grassroots activism, is fluent in five sign languages, and has a Ph.D. in Disability Studies.

Now that the 2030 Agenda for Sustainable Development has been adopted (on 25 September), it is good to reflect and look back on the process and look ahead to the next steps, particularly in the context of the inclusion of persons with disabilities.

Agenda 2030 versus the SDGs

First, I’d like to clarify Agenda 2030 versus the Sustainable Development Goals (SDGs). Agenda 2030 – adopted by the UN General Assembly in September – is a substantive 35-page document containing five major sections (one of which includes the SDGs and targets). The sections of Agenda 2030 include: (1) Preamble, (2) Declaration, (3) Sustainable Development Goals and targets, (4) Means of implementation and the Global Partnership, and (5) Follow-up and review. All the components are important, as they are interlinked, yet the SDGs are the main tool for monitoring and implementation, and are particularly important at the national and regional levels. Additionally, the SDGs are important for persons with disabilities as they contain seven explicit references to persons with disabilities.

The SDGs versus the MDGs

The SDGs build on the Millennium Development Goals (MDGs), the eight goals agreed in 2000 to end extreme poverty by 2015. The MDGs have had a tremendous effect on the collaboration and prioritization of development work in developing countries over the last 15 years. Yet, persons with disabilities were not referenced in the MDGs and consequently excluded from many development programs and funding streams. The SDGs and inclusion of persons with disabilities now provide an avenue for disability-inclusive development

Millennium Development Goals (MDGs) Sustainable Development Goals (SDGs)
Adopted in 2000 and end in 2015 Adopted in 2015 and end in 2030
Focus on developing countries Focus on all countries
To reduce extreme poverty To eradicate poverty in all its forms of sustainable development: economic (prosperity), social (people), and environmental (planet)
8 goals and 18 targets with 48 indicators 17 goals and 169 targets with 224 proposed indicators
No references to persons with disabilities 7 references in SDGs: education (2), employment, reducing inequalities, inclusive cities (2), disaggregation of data by disability [11 in Agenda 2030; 5 in indicators]

Looking back

The road to Agenda 2030 began in 2012 at the UN Conference on Sustainable Development (Rio+20) in Brazil in which one of the outcomes was an agreement by Member States to create a process to develop a set of sustainable development goals (SDGs). Subsequently, on January 22, 2013 the UN General Assembly called for the establishment of the Open Working Group by decision 67/555. The 30-member Open Working Group on Sustainable Development Goals (OWG) was tasked with preparing a proposal on the SDGs. Importantly the OWG opened the doors for civil society participation at an unprecedented level.

The OWG sessions ran from March 2013 until July 2014. The early sessions (March to June 2013) covered assessment and knowledge building, and following (November 2013 to February 2014), thematic discussions took place. The final sessions (March to July 2014) centered on debate, discussion, and finalization of the OWG report. The Report of the OWG was agreed by acclamation on July 19, 2014, which contained the SDGs.

Following the lengthy OWG process, the post-2015 intergovernmental negotiations took place from January 19 to August 2, 2015 with all Member States and thus more comprehensive. The SDGs were not re-opened for negotiations. On August 2, 2015 “Transforming Our World: The 2030 Agenda for Sustainable Development” was agreed by consensus by Member States, this document, with minor changes, became the final document (Agenda 2030) officially adopted in September.

Looking ahead

Positively, persons with disabilities are strongly included in Agenda 2030 with 11 references, seven of which are in the SDGs. Read here for details. Currently, persons with disabilities are also included in four proposed global indicators: (1) Poverty Eradication Indicator 1.3.1, (2) Employment Indicator 8.5.2, (3) Education Indicator 4.5.1, and (4) Peaceful and Inclusive Societies Indicator 16.7.1. Furthermore, the chapeau (introduction) of the final IAEG Report will contain statement on disaggregation of data that includes disability: “SDG indicators should be disaggregated where relevant by income, gender, age, race, ethnicity, migratory status, disability and geographic location, or other characteristics, in accordance with the Fundamental Principles of Official Statistics.” For additional details, read more here.

Now the focus of implementation must turn to national and regional contexts. Ministries and government will begin to focus on and implement the SDGs, especially those they consider national priority areas. Consequently, to ensure that persons with disabilities are included in this process, it is important to:

  • Push for the disaggregation of data by disability (in line with international standards) in national surveys to be used for the implementation and monitoring of Agenda 2030.
  • Create linkages between implementation and monitoring of Agenda 2030 in the global, regional, national, and local contexts linked to the UN Convention on the Rights of Persons with Disabilities (UNCRPD). This is key as the UNCRPD is legally binding and Agenda 2030 is voluntary.
  • Support DPOs and persons with disabilities as leaders and active participants in implementation and monitoring.
  • Identify key strategic partners for lobbying local and national governments.
  • Work as a networks, coalitions, and alliances with a unified message.

It is time to learn from our partners at regional, national, and local levels, as Agenda 2030 now will center on these areas. We must link the global processes to all levels and ensure that information is shared both ways.

Stay tuned in the next months for updates on the roadmap of the global implementation of Agenda 2030.

Related Blogs

2030 Agenda for Sustainable Development is officially adopted!

Agenda 2030 and Persons with Disabilities: A Closer Look


Empowering women with disabilities – why it’s vital to our societies

Jane Edge became the Chief Executive Officer of CBM Australia in July this year. Three weeks later she was in India visiting our partner programs and witnessing first-hand the transformative work of CBM.

I have been actively engaged in social change and international development for over 20 years and been privileged to work with many wonderful people, learning about different cultures and spending time in poor communities that are far from the tourist routes. Joining CBM Australia has allowed me to continue making a difference in the world through my work, which has been a lifelong principle and intrinsic to living out my Christian faith in a practical way.

Having recently visited India, I’d like to share the story of an extraordinary woman named Premnika.

Premnika is 35, both of her legs are severely affected by polio – she is unable to stand without support. Her parents are very poor and she had a very difficult childhood defined by neglect and discrimination.

Having met a young man of a different religion, they married, but this was not accepted by her parents who wanted nothing to do with her. The couple began their life together somehow but the strain of grinding poverty took its toll, and domestic violence became a regular event.

Premnika had two operations in a bid to improve her mobility, which is particularly challenging in a remote rural area. The lack of support she received from her family and the cost of the treatment ”broke her from the inside”. She was frequently thinking about ending her life when she was brought into the Community based rehabilitation program (CBR) of a CBM partner organisation. The project aims to improve social inclusion and quality of life of people with disability where disability specific services are extremely limited.

Premnika was counselled and persuaded to give the program a chance. She received leadership training and became a focal point in her village for disability rights and rehabilitation. She also received livelihood training and was interested in tailoring work. This work in rural areas, where electricity supply is very poor, requires strong, lower limbs. In Premnika’s case, willpower overcame that challenge. She was a given small loan to buy a sewing machine, given training and support to expand her business and links to market. Today, she has four machines and employs three other young women in her village. She particularly wants to empower other young women with disabilities. Premnika now earns about 15,000 Rupees per month – about $325 – which is such a significant change.

Last year, her achievements and contribution as a leader were recognised when she was honoured by the Chief Minister in her region, as a state role model. Premnika is an inspiration for many other people living with disability who strive to lift themselves out of poverty.

It’s truly a team effort. Together with our partners, our dedicated supporters, staff and volunteers, I’m proud to report from the frontline that we are having an extraordinary impact, improving the lives of some of the most vulnerable people in the world.

Out in the field from Kenya

CBM supporters Christine, Wendy and Dona recently spent a week in Kenya experiencing the work of CBM first-hand.

This week, we recount the highlights of their travels as they are equally heartbroken and inspired meeting CBM partners, and beneficiaries whose lives have been ultimately transformed through the generosity of CBM supporters.

Day 1 – Dona

Why? One may ask, why subject yourself to live yellow fever, typhoid and cholera inoculations, daily doses of Malaria tablets, to view the work of CBM in Kenya (and I certainly asked myself those questions before embarking on this field trip). The reasons at first were purely logical: the commencing date of the field trip perfectly coincided with, to the day, a return from a walking pilgrimage in Spain; and, as a Uniting Church co-ordinator of Luke 14, I was interested in learning more of the work of CBM.

Christine, CBM’s Linda Mwania, Dona, Wendy and CBM’s Rob Nicholls

Christine, CBM’s Linda Mwania, Dona, Wendy and CBM’s Rob Nicholls arrive in Nairobi and head out to the Maasai Markets for a cultural experience.

This first day, which happened to be a Sunday, was full of adventure. After a good, jet lag inspired sleep, we ate a hearty breakfast, and headed off to church. “Nairobi Chapel, was held under a giant tent. We felt warmly embraced by 1000’s of worshippers, beautiful instrumental praise and excellent teaching on Peter’s call to ‘go beyond’ from Acts 3-4, and an inspirational call for ‘E Groups’ to become more focussed on discipleship, care and evangelism. Was it really 2 hours?

We then ventured out for a bit of culture shock… in the shape of the “Maasai markets”. The vibrant colours of fabrics, jewellery, beading, paintings, sculptures, along with the fervent negotiation of price, left us feeling totally “exhiler-austed”… a whole new experience, calls for a new word!

From one amazement to another… Dinner with Kirsten, the regional director of CBM, who administers Kenya, Tanzania, and beyond – a woman of many gifts, with a passion for transforming lives; this trip has already left the inoculations well worth the jab and swig!

Day 2 – Wendy

CONFRONTING would be an appropriate description of our field trip to one of Nairobi’s slums, where we visited a school where a day care unit for children living with mild to severe physical disabilities, such as cerebral palsy were cared for by a team from CBM’s field partner APDK (Association for the Physically Disabled in Kenya).

Association for the Physically Disabled in Kenya (APDK)

Association for the Physically Disabled in Kenya (APDK) Headquarters; Employing people living with disability to manufacturing wheelchairs and tricycles

The mothers shared their heartbreaking stories of all the difficulties of raising a child who lived with severe disability. They were unable to walk, and in some cases feed themselves, and in a couple of instances their husbands had abandoned the family, others were single mothers, and several had other children.

They told of the rejection by the community, due to ignorance, superstition, religious and cultural biases, the isolation they suffered often locking the child in the house so they could attend to their various needs. They told of the difference their lives had become with the support of CBM, and being able to bring their child to day care, which is a preparation for going to school, (although some may never achieve that), The children are supported by CBM and APDK with wheelchairs and various occupational and physiotherapies, and social, and field workers, who visit and provide support, as there is no government financial assistance.

Wendy meets one of the mothers accessing APDK day care support

Wendy meets one of the mothers accessing APDK day care support.

Their attendance there at day care means that their mums are able to work to support themselves and their family or attend to the needs of their family.
Earlier in the day we visited the APDK headquarters in Nairobi, where physio, and occupational therapy are carried out, and impressively, wheelchairs, and tricycles are manufactured.

The tricycles are hand operated wheelchairs, but with room to carry goods, and an umbrella, so that a paralysed person can carry on a mobile business, and be independent. Most of the employees there at that factory have physical disabilities, so, again, the disabled, or as their sign says, “People with other abilities” are employed.

Day 3 – Dona

If I were to describe this day as briefly as possible, I would choose the words, “scintillating joy”.

AIC Kajiado Children’s Centre and Prevention of Blindness programs.  Wendy and Christine witness a Maasai woman’s surgery.

AIC Kajiado Children’s Centre and Prevention of Blindness programs. Wendy and Christine witness a Maasai woman’s surgery.

We drove east of Nairobi to visit the Massai community where the AIC Kajiado Children’s Centre and Prevention of Blindness program offers medical and pastoral care for those with a wide range of disabilities, from Cerebral Palsy and cataracts to club foot and stroke.

We were greeted by the very caring and professional director, Daniel, and were then led to the cataract examination area. Turning the corner, I had my first glimpse of the Massai women… tall, dignified, strong and wise, fabrics draped in brilliant colours, ears laced with brightly coloured beads, necks encircled with many bands of woven colour and dangling silver chains. Many had one eye covered, waiting eagerly for the eye patch to be removed.

After surgery, a patient is guided back to her bed to rest with a patch on for 24 hours.

After surgery, a patient is guided back to her bed to rest with a patch on for 24 hours.

We greeted each other initially with some reservation, but soon conversation grew, and we were welcomed into their world with smiles and hugs. One lady, dressed in purple, with thousands of beads, was ‘Susan’ who was 55, and had 12 children. Her husband sat opposite, dressed in a grey suit, his ears revealing a lifetime of elaborate decoration. When her patch was removed, she was overcome with joy, as were each of the others. Another sat for a long time, with her arm around my shoulders – and it felt warm with the heart and soul of our mother father God. She joyfully praised God for her healing.

We noticed some Massai women who were waiting for operations the next day, weaving their necklaces. We bought some from them, and took a ‘selfie’ in celebration of a day that was more than memorable.

We had experienced once again the fantastic results of CBM sponsorship – evident in changed lives brought about by authentic supportive communities and skilled staff whose care for those with disabilities is miraculous. We saw the fabulous diverse creativity of our God who plants His unabashed love into those who answer His call.

Day 4 – Christine

We return to Nairobi for our final day of new sights and experiences. We followed the right arm of the Rift Valley, the views at the top were spectacular plus, of course, many colourful roadside stalls.

We visited the AIC CURE children’s hospital. After a briefing on the work and vision of the hospital we enjoyed a lovely Kenyan lunch. In addition to the children treated at the hospital they have 38 regular outreach clinics especially to care for children with club feet. These clinics enable weekly plaster changes for 6-8 weeks then splinting. This often avoids the need for surgery. There are also monthly mobile clinics. The hospital provides full rehabilitation services including splints, prosthetic limbs and wheel chairs. The family liaison counsellor shared his own journey of scoliosis and a near fatal spider bite.

Christine at AIC CURE Children’s hospital.

Christine at AIC CURE Children’s hospital.

There is still a lot of stigma attached to congenital abnormalities. The patients we visited included a child with severe cerebral palsy who had a release of groin contractures. This will assist him to be able to use a special chair in the future. There were both congenital and traumatic leg/feet abnormalities corrected. One 7 year old boy had hand surgery to release burn contractures. Both he and his twin were burnt in a fire at four months old. Their treatment included skin expanders under the scalp for three years. Their mother was so happy that soon they both be able to function fully.

Another man had both his legs amputated for a “leprosy like” condition. He has been restricted with mobility using a wheelchair. With prosthetic legs he is now able to start his own business and rejoiced that he can now attend church again. His brother will have the same surgery soon. Private clinics assist the funding for much needed treatment for those who can’t afford much, if anything at all. After overcoming fear and reluctance to accept treatment, they will experience a improved quality of life that opens up more opportunities and a better future.

Day 5 – Wendy

This will probably be the last post before we fly back to Australia tomorrow night (Friday), when we will arrive in Brisbane on Sunday morning!
After an hour and a half in the snail paced Nairobi traffic, we reached our hotel, which was built in the heady days of the 1930’s, and is set in lush gardens, manned by armed guards.

Dona and Wendy say their farewell’s after an action-packed week in Kenya.

Dona and Wendy say their farewell’s after an action-packed week in Kenya.

Our time in Kenya, has been nothing less than incredible! The things we have seen, and the people we have met, either in community settings, or even in their own homes have been privileges which most people would never have the opportunity to share in.

This has been made possible because we were there as representatives of CBM Australia, and the partners of the work who we visited, and the people they care for, are incredibly grateful for the financial support they receive from CBM.

So we go home with fresh understanding of the impact of the work on the lives and livelihoods of so many people here in this vast continent of Africa, and what a joy and a privilege it has been!

A common voice for justice: Voices for Justice Conference 2015

CBM Australia’s Advocacy Support Officer, Elle Spring, recently attended the Voices for Justice Conference in Canberra; here she writes about her experience. Voices for Justice is an annual Christian advocacy conference in Canberra from October 10 to 13 organised by Micah Australia.

This year I was given the opportunity to attend – which I jumped at. During the four-day conference I had the unique opportunity to gather with close to 200 like-minded Christians from across Australia and raise a united voice to influence our nation’s political leaders and government policy for the benefit of the world’s poorest and most vulnerable people.

The first two days of the conference focused on giving participants the knowledge and practical skills needed to take their voice to lobby meetings at Australia’s Parliament House. I attended, along with my fellow participants, a range of engaging workshops, advocacy training, lobby meeting preparations and policy briefings, and listened to inspiring speakers.

Lobby meeting

Elle Spring (left) with Senator Linda Reynolds (middle) and lobby group members at Australian Parliament House, Canberra.

There were many highlights for me during these first couple of days, but if I had to choose just two, it would be listening to Sef Carroll from the Uniting Church speak so passionately about climate change and the impact on women in the Pacific region, as well as an eye-opening simulation of life as subsistence fishing families living in the Pacific.

The simulation broke participants into many family groups and gave us a set of real-life scenarios. The game gave us the smallest glimpse of what is reality for so many families living in the low-lying Pacific islands contending with an unreliable source of income and the impacts of climate change.

By day three, we were armed with all of the information needed to take our voices to Senators and MPs at Parliament House. This year the lobby meetings were calling for climate change action and restoring Australian aid.

Over two days,participants attended almost 100 meetings – in their allocated lobby groups. What a way to unite our voices for justice! My lobby group had two meetings, one with Dr Dennis Jensen MP and the other with Senator Linda Reynolds. It was an excellent experience speaking to Senators and MPs and advocating for issues that we feel so passionate about.

Voices for Justice participants gather on the lawns of Australian Parliament

Voices for Justice participants gather on the lawns of Australian Parliament House for a candle light prayer vigil to pray for a world free from poverty.

While carrying out lobby meetings at Parliament House was obviously a huge highlight, one of the greatest highlights of the conference for me was the Pacific Challenges and Australian Engagement Forum at Parliament House, where the new Minister for International Development and the Pacific, Steve Ciobo, was amongst the speakers on the panel.

CBM Australia’s community engagement officer, Stevie Wills, also opened the Forum with her new Australian Aid poem, which was performed for the first time at Voices for Justice.

The poem was a strong message to remind the speakers, and audience, that Australian aid is not about charity, it’s about development – and Australia can do more in promoting a just and equal world for all.

The conference also coincided with the launch of Micah Australia – the renewed vision of Micah Challenge. It was an ideal time to reveal the new vision and brand identity of Micah Australia as we were truly putting it into practice – “Do Justice Together”.

Altogether, it was an incredibly inspiring four days. I feel extremely lucky to have added my voice, along with all participants, to a common voice for justice – now let’s continue to do justice together.

CBM in Kenya – A Field Visit Part 5

In this final instalment from Kenya, CBM’s Rob Nicholls highlights the impact CBM’s partner organisations are having in the poorest communities. He also takes the time to reflect on how CBM is helping those in poverty with a disability to dream again… Read Part 1, Part 2, Part 3, and Part 4.

Rob with AIC Cure KenyaWe sat in a humble Board room in beautiful surroundings in Kijabe in the spectacular Rift Valley. Peter, the CEO of CBM partner AIC Cure Kenya spoke of the goal of the work done in this hospital as assisting people “to be able to dream again”. Beside him sat Livingstone, who has worked with family liaison and advocacy in the organisation, and was the first patient of Cure Hospital back in 1989. He had was by a spider at the age of 9 and was headed for a short life when he connected with Cure. Livingstone’s previous experience with misdiagnosis and witch doctors had left him and his family in despair and expecting a short life. However, at Cure he was diagnosed with scholiosis, had surgery and other treatment and returned home to pursue his schooling and his future. Some years later he reconnected with Cure and became a volunteer until he completed his college degree when he joined the staff. He dreamt big and now helps others to do the same.

AIC Cure Kenya treats about 10,000 patients each year with about 7,000 surgeries. They conduct mobile clinics around Kenya, as well as fixed club foot clinics in most counties in Kenya. They work with children and adults with conditions including club foot, untreated burns, cleft lips and palates and hydrocephalus. They carry out corrective work, including surgery, fit prosthetics and provide training and counselling to those with whom they work. We visited the patients currently there for treatment and met a number of children and their mothers, as well as single adults in for surgery.

One young man, Joseph, was there having prosthetics fitted to both legs which had been amputated. This 25 year old man was to be go home soon and his older brother would come in for the same treatment. Both brothers had developed a “leprosy-like condition” which necessitated these amputations. They lived in very poor circumstances with no education, and the staff had decided that they personally would all fund a new home for the two men to give them a chance in life with a more positive environment and no rent. We asked Joseph what he wanted to do now that he had his prosthetics. He said he wanted to go back to church and start a small business, in that order. He was regaining his dreams.

A beautiful mother sat on the bed with her seven year old daughter whose hand was wrapped in bandages. This girl and her twin sister were burnt in a fire in their home at four months of age. When they got to Cure a process of burn treatment commenced which would see both girls regain the skin on their heads and the use of their hands. It was a long and difficult journey but today the mother says “I can smile now!” More dreams resurrected.

An important feature of the work of Cure was the work they were doing with people whose disability could not be removed by various treatments. People like Joseph who would live with their disability for the rest of his life and others who would always use a wheelchair for mobility. We had walked through the rough terrain of many villages so it was exciting to find a rough terrain training course for people using wheelchairs, including rocky tracks, large obstacles and steps. Of course the wheelchairs they used were also modified for such conditions. When the Olympics feature a cross-country wheelchair race, I think the gold medal winner might be a graduate of this training!

The scarce resources we saw at Cure were being maximised to bring all the benefits possible to the people who turned up at their Kijabe clinic or any of the mobile clinics. There was a sense of great optimism and hope all around this vital service despite how under-resourced Peter and his team were for the demands that were put on them. Another community that needs all the support we can provide, including prayer, so that they can help people who’ve lost hope to dream again.